Planet Gift Baskets Partners With The Lemon-Aide For Life Fundraiser To Find A Cure For Spinal Muscular Atrophy
Planet Gift Baskets supports finding a cure for Spinal Muscular Atrophy by participating in the annual Lemon-Aide For Life fundraiser. Each year families from Highland, San Bernardino and surrounding Inland Empire cities gather to raise money to find a cure for the disease known as SMA that can affect children.
Spinal Muscular Atrophy is a neuromuscular disease characterized by degeneration of muscles.
A small group of parents started Families of SMA in 1984. They wanted
to raise funds for SMA research to cure the disease, and support all
affected families. Back then, very little was known about Spinal
Muscular Atrophy. Very little research was being conducted. No one
knew the cause of the disease let alone how to find a treatment and a
cure. Patients and families affected by SMA were on their own and had
little hope. Today, FSMA has a different story to tell. Families of
SMA has created hope for our community that did not exist in 1984. Families of SMA raised and funded over $50 million for SMA research. Their support
comes from generous individual donations and numerous fund raising events
held by volunteer families and our Chapters.
Kim Donnelly, mother of Joseph Jean who died of SMA at eight months old, hosts the SMA lemon- aide stand every year close to the anniversary of his death. The fire department, and hundreds of local families come by and purchase lemonade and donate their time and money to help support the families who have been effected by SMA.
Not only are donations offered to find a cure for the disease, family support is also a large portion of the FSMA (families of SMA) main goals. They help families understand the disease as well as offer much needed support for caring with an infant with the diagnosis. Because SMA can be fatal, support is given through their website found at www.FSMA.com to help families cope with infant loss and grief as well as caring for a baby with the disease.
Planet Gift Baskets specializes in sympathy gifts, including infant and child loss memorial gifts. "We frequently get requests for meaningful infant sympathy loss gifts. Because SMA effects children, we felt this cause was a perfect fit for us," states Pam Brown, owner of Planet Gifts Baskets. All fund raising for families of SMA is done by families, neighbors and friends effected by the disease through bake sales, lemonade stands and other community events. If you are interested in donating to help further research and support families effected by SMA, visit www.fsma.com for further information.
Spinal Muscular Atrophy kills more babies than any other genetic disease.
Degeneration and death of the motor neurons (also called Anterior
Horn Cells) in the brain stem and spinal cord produces weakness in the
muscles of swallowing, breathing, and limbs. This disease afflicts
infants, children, and adults worldwide. It is estimated that spinal
muscular atrophy occurs in between one-in-6,000 and one-in-20,000
births. Advances in our understanding of the genetics of this disorder
confirm that the majority of children and adults afflicted with SMA,
have inherited this disorder by receiving one gene from both their
mother and their father. This is termed "autosomal recessive genetic
The above was written for Fight SMA by: Robert T.
Leshner, M.D., Professor, Neurology and Pediatrics,
Children's National Medical Center